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AUTUMN NEWSLETTER 2016

GARY'S CHALLENGE
Our trustee Gary Manley, who has Ledderhose disease, is running 2191 miles in 2017 to raise funds and awareness for the British Dupuytren’s Society. As part of this he will be running his first marathon – the Brighton Marathon – alongside his wife Katie in April. This is something Gary never thought he would be able to do. Find out more about the 2191 challenge and make a donation

NICE UPDATE

NICE are currently reconsidering their official guidance on radiotherapy for early Dupuytren’s. Thank you to all who submitted responses to the review. We attended the committee meeting in October and a decision is expected in December. If radiotherapy has helped you please do get in touch and share your experiences by emailing us. 

The next stage of the appeal into Xiapex treatment for Dupuytren's disease is a meeting in Manchester on 24th November which the BDS will be attending. We will let you know what the outcome of the meeting is and when we can expect a decision.
RESEARCH
Check out our new page on our website with lots of information on scientific research currently being undertaken into Dupuytren’s disease.

WELCOME TO OUR NEW TRUSTEES

We are delighted to welcome five new trustees to the British Dupuytren’s Society this autumn. Peyronie’s specialist David Ralph, podiatrist surgeon George Flanagan, hand surgeon Mike Hayton, radiation oncologist Richard Schaffer and plastic and hand surgeon Dominic Furniss have all joined our board and we are thrilled to have their knowledge and expertise. Keep your eyes peeled for a new page on our website with more about them soon!
HELP US WHEN DOING YOUR CHRISTMAS SHOPPING!
If you are shopping online for presents this Christmas then please sign up to Give as you Live. Once registered, every time you click through and shop at thousands of online retailers the British Dupuytren’s Society receives a donation and it doesn’t cost you a penny.     
NEW BOOK ON DUPUYTREN'S
Our chair Anna Schurer and trustee Gary Manley are both contributing authors to a new book ‘Dupuytren Disease and Related Diseases - The Cutting Edge’. Read more here!
PATIENTS' FOCUS GROUP
We held our first focus group in September in London and were joined by four patients with Dupuytren’s and/or Ledderhose. It was a great opportunity to share experiences and discuss how the British Dupuytren’s Society can help patients going forward. The findings will be discussed at our next Trustees Meeting and we will update you all on our plans. If you would like to be considered to attend events like these in the future please email us
Copyright © 2016 British Dupuytren's Society, All rights reserved.

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British Dupuytren's Society · 22 Wainfleet Close · Wigan, Lancashire WN3 6TG · United Kingdom

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